The Rare hour with Christopher Velona Podcast
1) Gina Mundy~ "Life Changing author."
Gina Mundy is an attorney specializing in childbirth cases. For over 20 years, her focus has been investigating and analyzing mistakes that arise during labor and delivery. She has spent countless hou...Show More
2) Mental Health support has a new face.
David has a rare disease called Cowden Syndrome and is from the U.K. He set up a rare disease men's mental health group three and a half years ago to give men a chance to share their experiences and l...Show More
3) Nasty People in Rare...What gives?
On today's Rare Thoughts, I give my opinion about the summer conferences so far. Also, I discuss why people are so nasty in Rare diseases.
4) Wes Michael~ Giving families the opportunity where it is most needed. Their opinion.
Welcome to our summer series. You probably noticed a change in the intro right? Lol. We believe summer should be full of fun, good vibes, and great tunes! Was Michael A founded Rare Patient Voice in ...Show More
Wes Michael~ Giving families the opportunity where it is most needed. Their opinion.
40:49 | Jun 29th, 2023
5) Rare thoughts on the #Rarewarrior 5 x 5 challenge!
In this episode, we break down all of the sponsors and the fun day for the second, annual Rare warrior 5 x 5 challenge
6) Conference Season
Do better, be better!
7) End of 2022 Re Cap Show
Join us, as we recap the best in the worst of 2022 through Project Sebastian, CSG, relationships, addiction, mental health, family, and the difficulties of living in rare. You can find us on Social Me...Show More
8) I AM ANGRY
Today I talk about why am angry in this rare disease space.
9) Rare Thoughts...First 2 weeks of september.
The first two weeks of September or very painful and challenging. However, what does not kill you makes you stronger right? Thank God for my friends at global genes. The rest of the month should be ea...Show More
10) How social media helps awareness with Megan Loden
Megan is changing how rare disease families interact. With the help of social media, Megan's spin on the day-to-day lives of rare diseases has us laughing a bit more. You can see in her Instagram reel...Show More