Endpoints Podcast
1) Your Story, Our Science: Her ALS Story and ALS TDI Bring Together Science and Lived Experience
Nobody knows ALS better than people living with the disease. Therefore, it’s crucial for scientists to utilize the perspectives of people with lived experience in their research. Earlier this ye...Show More
2) How Brain Computer Interfaces (BCIs) Could Help People with ALS Communicate
Brain-computer interfaces, or BCIs, aim to enable people to control various adaptive devices directly with their thoughts. There are many BCI devices currently in various stages of development, with t...Show More
3) The Power of Big Data in ALS: Dr. Danielle Boyce
Today on Endpoints, Dr. Danielle Boyce joins us to explore how data science is transforming our understanding of ALS and why the ALS Research Collaborative (ARC) Study presents an exciting o...Show More
4) So Much So Fast: Documenting the Earliest Days of ALS TDI
25 years ago, Steven Ascher and Jeanne Jordan began filming a documentary about a new, one-year-old organization and the family that founded it. That organization was called the ALS Therapy Developmen...Show More
5) The ALS Trial Navigator: Dr. Nadia Sethi on Building a Comprehensive Clinical Trial Database
In February 2024, ALS TDI launched the ALS Trial Navigator, a set of online tools designed to help people with ALS find clinical trials. Users can fill out a questionnaire to be matched with trials th...Show More
6) Chris Ritter of Oakland United Beerworks: An Ales for ALS™ Story
Chris Ritter, the co-owner of Oakland United Beerworks, never thought he’d make a profession out of brewing. He had always loved beer but was a lawyer by training. Brewing was his son Andrew’s great p...Show More
7) Biogen's Dr. Stephanie Fradette on the Current State of ALS Research
We need more – likely many more – effective treatments to end ALS. Progress in ALS research has been too slow for too long but, in 2024, we’re witnessing significant advances and a new pace of progres...Show More
8) ALS TDI's Early Years: Founding the First Nonprofit Biotech
In 1999, Stephen Heywood, who was 29 years old at the time, was diagnosed with ALS. His family was devasted when they learned that there were no treatments that could slow or stop his disease. His bro...Show More
9) Kids Quest to Cure ALS: Getting Young People Involved in the Fight Against ALS
Kids Quest to Cure ALS is an organization for kids, by kids. Their mission is to get young people involved in the fight against ALS. The group was founded by kids in the US and Canada – all of whom ha...Show More
Kids Quest to Cure ALS: Getting Young People Involved in the Fight Against ALS
11:03 | May 1st, 2024
10) Many Shades of ALS: Supporting People of Color with ALS
One of the most common misconceptions about ALS is that it only affects older white men. In reality, the disease can affect anyone of any age – and of any ethnicity. Many Shades of ALS, a team within...Show More