Rarity Life Heard Podcast
1) Rarity Life Heard in conversation with Tayen Coppard
In this episode we will hear from fifteen year old Tayen, who lives with Hypohidrotic ectodermal dysplasia, which is 1 of about 150 types of ectodermal dysplasia. Most people with hyperhidrotic ...Show More
2) Rarity Life Heard in conversation with Tully Kearney MBE
In this episode we spoke to Tully Kearney MBE, about her life as an athlete whilst managing a progressive neurological movement disorder. They say that to be a successful Olympian you need determinati...Show More
3) Rarity Life in conversation with Dame Laura Lee DBE
In this episode we spoke to Dame Laura Lee DBE, the Chief Executive of Maggie’s about the incredible work they do, and the ethos behind it. The ways in which Maggie’s are changing and positively impac...Show More
4) Days of Rare: Christina Malcolm-Day
In this episode we hear from Christina who was diagnosed with a paraganglioma, which is a tumour in the neuroendocrine system at the age of 34. A neuroendocrine tumour is a rare tumour that can develo...Show More
5) Days of Rare: Caroline Phillips
As part of the Days of Rare exhibition Caroline spoke to Same but Different about her Behçet’s disease diagnosis. Caroline was diagnosed with a Behçet’s disease after she started experiencing problems...Show More
6) Days of Rare: Bethan Roberts
In this episode we will hear from Bethan who’s daughter Florence has been diagnosed with Mosaic trisomy 8, a chromosomal abnormality that can affect many parts of the body. In individuals with mosaic ...Show More
7) Days of Rare: Angela Hughes
At the age of 44 Angela was diagnosed with Charcot-Marie-Tooth disease, a progressive and degenerative condition. For many years Angela fought hard to continue living as she always had, to work hard, ...Show More
8) Rarity Life in conversation with Henry Fraser
We speak to Henry Fraser about his life, his art and his two award winning books. After a life changing accident at the age of 17 Henry truly had to learn to ‘accept and adapt’ to the challenges he fa...Show More
9) Days of Rare: Abigail Davies
In this episode we will hear from Abigail who lives with SAPHO syndrome. SAPHO syndrome is a chronic disorder that involves the skin, bone, and joints. SAPHO syndrome was given its acronymic name base...Show More
10) Rarity Life in conversation with Hannah Harpin
Hannah always knew she wanted to be a model, and still dreams of the day when she can walk into a high street shop and see her photographs displayed as part of a huge promotional campaign. In the Frag...Show More