On One Condition Podcast
1) Episode 78: Gay Grossman - ADCY5
Sylvain speaks with Gay Grossman about life with ADCY5, a rare genetic movement disorder, and the journey she and her daughter Lilly have travelled together. Gay shares the long and often lonely road ...Show More
2) Episode 77: Marguerite Hughes - PWS
Marguerite shares the story of her son Louis and their life with Prader-Willi syndrome (PWS), a complex rare disease. Marguerite speaks with honesty, warmth and clarity about the medical, emotional an...Show More
3) Episode 76: Angela Papazoglou - IRF2BPL
This is the story of Yannis, nicknamed "Mr. Sunshine", told by his mother Angela. Yannis is a 5-year-old boy who lives with the ultra-rare IRF2BPL-related disorder, which has affected his development ...Show More
4) Episode 75: Kayleigh Berkoski - Addison's Disease
Kayleigh opens up about living with Addison's disease, a rare condition where the adrenal glands fail to produce enough cortisol. Diagnosed at just 15, Kayleigh describes the medical journey that led ...Show More
5) Episode 74: Erika Stariha - SATB2-associated Syndrome
Erika shares her family's seven-year journey to find a diagnosis for her son, Urban, who was eventually found to have SATB2-associated syndrome. With warmth and candour, Erika explains what it's like ...Show More
6) Episode 73: Carolyn McNamara - Acromegaly
Acromegaly is a rare condition caused by a pituitary tumour that leads to excess growth hormone. In this episode, Carolyn shares candidly how her symptoms, which developed slowly and over a long perio...Show More
7) Episode 72: Giselle Cortes - Cushing Syndrome
Giselle shares her journey with Cushing syndrome, a rare and often misunderstood condition caused by an overproduction of cortisol. For years, Giselle's symptoms were dismissed by doctors as lifestyle...Show More
8) Episode 71: Dariya Butcher - HSP Nephritis
Dariya's rare autoimmune kidney condition, HSP Nephritis, has shaped much of her childhood and continues to affect her life today. Diagnosed as a child after a long and difficult journey to recognitio...Show More
9) Episode 70: Kelly Forester - Wet MD
Kelly speaks with openness and wisdom about living with a condition that is not life-threatening, but deeply life-altering – wet age-related macular degeneration (Wet MD). From the shock of her first ...Show More
10) Episode 69: Daniel Price - TSC
Daniel lives with a rare genetic condition, Tuberous Sclerosis Complex (TSC), that results in non-cancerous tumors to grow in various organs, including the brain. From being diagnosed as a child throu...Show More